Jackson Williams is a 5 year old student at Sauquoit Valley Elementary School. He was born with Total Colonic Hirschsprung’s Disease, which is a colorectal disorder that affects the nerve endings in the large intestine. In Jackson’s case his entire large intestine was non-functioning. He managed this condition with mostly minor issues for the first 5 years of his life.
In November 2016, Jackson began to experience several episodes of intestinal prolapse; this led him to have a corrective surgery at Nationwide Children’s Hospital in Columbus, Ohio on January 3rd, 2017. Shortly after that Jackson began to display signs of a far worse condition known as Toxic Mega Colon. Because of this, on January 15th after being transferred back to Columbus, Jackson underwent emergency surgery to have his entire large intestine removed. Due to the severe state of the colon at the time of surgery Jackson experienced numerous post-surgery complications including infections in both his incision and abdominal cavity, causing him to be critically ill. This extended his stay in the hospital to nearly 8 weeks, and resulted in several additional procedures throughout his stay. Because of one of the infections Jackson also developed a full blockage in his right kidney.
Over the next six months Jackson and family will travel to Columbus for additional procedures, and another corrective surgery to repair the kidney in hopes to regain full function. This will result in another extended admission/stay in Ohio this fall.